Medical Miracles A special place and Dont complain about your life if it stinks.....

JustJason

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Kate and I are geating ready for the big move down to FL. We had to get a few things out of the way before we could go down. 1 of which was her once a year cardiac appointment. We were hoping it would be smooth sailing, and it almost was, then it happened.

Kate did her stress test, everything was good. 5 minutes into the cooldown her heart shot up to 180bpm and stayed for 3-4 minutes. Lab tech was nervous enought to call the cardiologist on call who rushed down. The episode passed. She was lucky enough to have the an EKG hooked up to her at the time. Cardiac doc passed the readout along to the Cardiac surgeon and they called a Cardiac team together to see what could be done about this.

They conveyed on the matter, the cardiac surgeon said "i can fix this".

Yesterday I was with Kate 14 hours in the hospital so she could have something done called catheter cardiac ablation. She is 25, but because she had her first open heart surgury as a child at Boston Childrens Hospital, she pretty much gets a free ride there for life. She was on then off the table in 6 hours, but the day took 14.

While I sat in the waiting room I met a bunch of nicest most nervous folks you've ever met. All there for the same reason, kids with heart problems.

Parents who sat there with their bored 12 year old daughter. They were there with me about 12 hours. They had a 14 year old son. His 5th cardiac surgury. Needed a valve replacement/work. They did a cath procedure on him. He was on/off the table in 4 hours.

Young parents, 28 and 25. First born child aged 3. Has hole in heart. They were at their local hospital who wanted to do full open heart on him. They went to Childrens and they installed what they called an umbrella patch, again through a cath. Boy was on a off the table in 2 1/2 hours. Prognosis is 100% after a little recovery.

Single mom, 3rd kid, age 2. Has pulmonory anurism the size of the heart itself. Got cath'd yesterday, will have full open heart tomorrow to repair the problem.

Dorchester kid, aged 9. Was shot through a main artery at age 6 in a drive by stray. Was in for scarring repair. Had irregular heartbeats. Was on and off the table in 5 hours. Doc's felt good about recovery.

And lastly, 7 year old girl. Twin cardiac anurisms. Doc's able to fix via catheter. She was on the table for 9 hours. Prognosis excellent.

It was funny. When I first when into the waiting room we were all strangers. At the end of the day. We were all friends.

We are all laughing together, crying together. We played some cards. Talked about life. And made the best of it, while we all had loved ones in surgury at the same time.
At the end of the evening, when the 2nd shift came in around 11pm (and when the rules get lax about whose allowed in the recovery section and who is not) We all checked in on eachother.
All 5 families came by here and there checked in on Kate and I while in her recovery room. Kate was a bit immobile, but I made it a point to check on everybody else too. Everybody made the rounds on everybody else just to say hi and offer a smile and words of hope.
It was almost like for 14 hours of my life I had a different family, and everybody truely cared for everybody else (without the being nosey bit).
The waiting room in the cardiac section of the hospital is truely a special place. You will never find another place on this earth other than this 15x15 room in which people are so humble, and friendly, and comforting yet with their own needs to be comforted and re-assured. It's truely a loving place.

I made friends with 5 families yesterday. I made friends with 4 out of 5 cardiac children patients yesterday. I played go fish with a 9 year old inner city black kid who had been essentially shot through the heart and had 2 previous surgurys. Kates jonny happened to slip and she flashed a 14 year old boy her big ol boobies. Everybody laughed, there was no embarassment.

If you ever think your life sucks... I'd invite you to go and spend an hour in the general waiting area at Bostons Children. You'll laugh, you'll cry, you'll make friends, and you'll see parents who just had a kid die. It's the most humbling place on earth.
 

marlboro180

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Re: Medical Miracles A special place and Dont complain about your life if it stinks..

If you ever think your life sucks... I'd invite you to go and spend an hour in the general waiting area at Bostons Children. You'll laugh, you'll cry, you'll make friends, and you'll see parents who just had a kid die. It's the most humbling place on earth.

Jason,

I know that just had to be such a trying day for you, and am glad that Kate will be okay.

I agree, Boston Childrens is a strangely wonderful place. My mom got to meet many nice people there in that waiting room years ago when I was a teen. We flew out there for me to get my heart cathed and a valve opened up and their care is second to none in my opinion. She went through the same thing as you, meeting the great docs and staff, to the other parents and relatives in there, all waiting nervously to hear how their loved ones are doing....and met many nice people in general.

I however, only got to meet the docs and nurses and staff, and was a little zoned out for most of it. I will say that I never once thought anything but good of those folks.

Get well Kate!
 

LadyFish

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Re: Medical Miracles A special place and Dont complain about your life if it stinks..

I'm so glad you posted this. The same is true in the cardiac waiting room at St. Lukes Hospital in Houston. Although the patients are much older, the wait times are the same and you can see the worry and emotions on the faces of those waiting for their loved ones. Conversations about surgery comparisons ensue. Eventually, the conversations lead to children and grandchildren, what you do for a living, etc. and friendships are made. Even funny stories are shared, my guess is out of nervousness. But they bring some levity to the situation and are generally appreciated by all.

One by one, people are called up to the desk to speak to the doctor when he/she comes out of surgery. They take them out into the hallway and shares the results. Not all of the results are as positive as in a children's hospital. It's painful to watch and immediately you begin to pray for your new friend to find peace somehow.

People banding together like this is a beautiful thing to experience.

My best to Kate in her recovery.
 

Bob_VT

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Re: Medical Miracles A special place and Dont complain about your life if it stinks..

Get Well Kate...... I have been in that position and you will feel better ;)

Jason...... one of my childhood friends is a Dr there and I have a tremendous amount of faith in those people.

I have spent time visiting the children at the Shriners Hospitals for Children ;) Great places.
 

royal0014

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Re: Medical Miracles A special place and Dont complain about your life if it stinks..

Almost restores your faith in mankind. Beautiful.....

Get Well Soon Kate, and God Speed :)
 

kenmyfam

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Re: Medical Miracles A special place and Dont complain about your life if it stinks..

Wishing Kate a speedy recovery. Amazing the comradeship that exists in those situations.
 

stic88

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Re: Medical Miracles A special place and Dont complain about your life if it stinks..

glad to hear she is doing ok. my godson who is twenty now was born with a heart condition. he has had 8 open heart surgeries and 27 major surgeries overall by the age 14. the first being when he was only 36 hours old. the doctors said he would not live past the age of 3. you are correct when you say you meet the nicest and most humble people in situations like that. i have spent many hours in the waiting room and have had alot of strangers literally crying on my shoulder. the childrens hospital network is amazing and the doctors and nurses there are the best. hope your wife heals soon and may god watch over all the children who bravely forge through their trials in life.
 

jonesg

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Re: Medical Miracles A special place and Dont complain about your life if it stinks..

My mum was a nurse in the childrens cancer (terminal) ward back in England,
she worked the overnite shift.
Sometimes she'd tell of holding a child patient as they died in the middle of the night.
I was 9 yrs old and it made me think on my way to school.
After I quit trying to figure it all out, the answer simply came.

"When the answer is simple, God is speaking." (Albert Einstein)

THerefore, what must we do? Luke 3:10
 

veritas honus

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Re: Medical Miracles A special place and Dont complain about your life if it stinks..

It's really easy for some to say "I know what you mean", and not have a clue. I lost my father to his first MI when he was 57 years old. I was only 19. I'm a paramedic on a critical care transport team. Our 1st priority is being a neonatal critical care transport team. We also provide care for Pediatrics and adults. When I'm not on a transport, I'm helping out in the Emergency Center. I experience what you've described on a regular basis. I work pretty insane hours. When I'm not working, I get called in all the time. I work with preemies all the time. Bringing a baby who weighs less than 2lbs. for their 2nd or 3rd surgey is a heavy reality. I see this in all life stages, beginning to end. It's not easy knowing that someone just lost a loved one. It's even more impactive when I'm one of the people who just couldn't do enough to help. It's a beautiful thing when I'm one of the people who did... I can truely empathize with you. Stay strong Jason. You seem to have a wonderful outlook on life. You and Kate are now in my thoughts and prayers.
 

tswiczko

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Re: Medical Miracles A special place and Dont complain about your life if it stinks..

I hope Kate is feeling better and has a good recovery.

Not everybody has it easy, and I have found (through experience) that when you face an adversity you seem to appreciate the things other people would take for granted. I sometimes rant about my experiences and try to laugh at the situation I am in and hope others don't get offended and laugh along with me. (Although some people don't know how to handle my personality when I get wound up). But the last thing I want is for someone to feel sorry for me.

Best of luck and God speed.
 

CheapboatKev

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Re: Medical Miracles A special place and Dont complain about your life if it stinks..

Very well written...I wish Kate all the best.
When you guys are back in CC...Let me know, you have a friend over the bridge
 

CheapboatKev

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Re: Medical Miracles A special place and Dont complain about your life if it stinks..

Heyyyyyy...This was 4 months ago!

Still glad I read your post JJ...
 

Summer Fun

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Re: Medical Miracles A special place and Dont complain about your life if it stinks..

:) .:) . :)
 
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